One of the most common forms of cancer among children under the age of 15 is leukaemia. Leukemia accounts for 32.5% of all paediatric cancer cases globally. Leukemia was discovered in 46.5% of Pakistani children with cancer. The mother and father share responsibility for the direct and indirect care of their leukemic child. The responsibilities involved in providing care for the leukemia-stricken kid fall under the category of direct care, while facilities and financial assistance are considered indirect forms of care.
To determine the effect of educational intervention on Care burden among parents having Children with Leukemia
A quasi experimental study designed was used. A sample of n=81 participants was recruited from Sadiq Abbasi Hospital Bahawalpur, through convenient sampling. The care burden questionnaires were used to measure care burden and psychological wellbeing among parents having children with leukemia. Pre assessment was done during May 2022 and then 6 sessions of educational interventions were provided during the period of June 2022 to December 2022. After completing intervention, the post assessment was done in January 2023. Filled questionnaires were entered and analyzed through SPSS version 21.
A very highly statistically significant difference was found in results of pre intervention and post interventional scores of parents caring for their leukemia children, z( -8.013), p value=0.000, with mean and SD (85.91±2.248 vs. 54.21±12.489). It is shown by the above study results that the interventional program had a statistically significant effect on parents’ psychological wellbeing and care giver burden.
Hundred percent of the parents of children with leukemia in this study were having high care burden before the interventional program. After the interventional program, a very highly significant effect was found where the care giver burden was decreased with clinical and statistical significance
Key words:, Care burden, Leukemia, educational intervention, parents